Even If You Have Colon Cancer, Spirit Air Doesn't Give Refunds

Sweet.  From Consumerist.
I had purchased a ticket on Spirit Airlines for a friend of mine in Brooklyn, New York to come and visit me in Orlando. I had purchased the ticket about three months prior to the departure date so I could get the lowest fare. To make a long story short, my friend had been diagnosed with colon cancer and had to start treatment immediately....

This meant that he would not be able to make the trip down to Orlando and when I explained this situation to Spirit Airlines they couldn't care less. I even offered to give them medical documentation on my friends condition and they said, "sorry but Spirit policy is no refunds".

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Onyx Pharmaceuticals

One of my favorite shows to watch is Wallstrip. Lindsay Campbell provides a very fun, quick, smart walk through individual stocks and meets regularly with leaders of companies and Wall Street. I was catching up on some feeds last night and came across her recent post on Onyx Pharmaceuticals.  ONXX is a company that makes Nexavar, a drug for liver cancer and hopefully lung cancer.  Holly hasn't been feeling well the past few days.  It is a drag.  This made me smile last night.

Chemo Room Etiquette

Kate Thaxton has a great post today about rules for the chemo room. My personal favorite:
Eat your Big Mac before you step foot into the chemo room, even if that means cramming it down while standing in the elevator. Most chemo patients walk the line between nausea and hunger - the smell of french fries will usually send us running for the bathroom.
I'll admit, I'm slightly guilty of this, especially since Starbucks is just down the street from our center. Also, since Holly tries to get the first appointment of the day, I'm usually downing breakfast there. I promise, Kate, I'll try harder not to do this in the future. I do love that our center brings lunches from Panera to patients and their families. We are usually gone by then, but it is a nice touch. I usually get free cokes and JR's.

Life's Funny Rollercoaster

I was really bummed this morning. Holly feels lousy and has felt pretty under the weather since her treatment on Monday. Watching someone you love be sick for so long gets pretty old. Then I got a nice email. Today, Reuters ran a story about people who use online video as a way to raise awareness for various causes. The article included comments by the head of YouTube's news and politics division, the CEO of Pure Digital, the program director for Witness, Peter Gabriel's amazing foundation and me. One of these kids is not like the others. When we made the video, we never thought that it would receive so much attention, but I'm really glad that it has. It is everything that we hoped that it would be. Here is the article:
11:53 19Oct2007 Nonprofits turn to YouTube to raise awareness, funds By Yinka Adegoke NEW YORK, Oct 19 (Reuters Life!) - After Holly Schnaars, 37, was diagnosed with late stage colorectal cancer she picked up her video camera and decided to tell her story on the online video site Metacafe to raise awareness of the disease. The mother of two from San Jose, California, is just one of thousands of Americans, as well as charities and nonprofit organizations, who use online video to publicize their cause and raise funds as it becomes easier and cheaper to post videos than hope for television coverage or other forms of marketing. The ground shift has prompted the biggest online video sites led by YouTube to reorganize their pages to make it easier for such users to find videos related to their favorite causes. YouTube, which is owned by search giant Google Inc , is creating a special section for nonprofits to air their videos and link them to its Google Checkout online payment system to receive funds directly. "Nonprofits understand that online video isn't just a way to broadcast public service announcements on a shrunken TV set," said Steve Grove, head of news and politics at YouTube. "It's a way to get people to do more than just absorb your message but to engage with their user generated content as well," he said. POWER OF VIDEO It's not just the online video companies giving support to individual causes and charities. Pure Digital, maker of the Flip video camera, has said it plans to give away a million video cameras to nonprofit organizations around the world to capture images and moments in places traditional media outlets might not be able to reach. "Video has power and media has power but the challenge is that the media is limited to telling stories that are controlled by a very small number of people," said Jonathan Kaplan, chief executive of Pure Digital. "This program along with YouTube and other sites will expand the media universe for learning what's really going on in the world," he said. One recent example of the power of video was the impact of clips of the Myanmar army's confrontations with local protesters which were posted on YouTube and other Web sites. Some of the clips made their way to mainstream news outlets. Witness, an activist organization founded by veteran rock star Peter Gabriel in 1992, has focused on raising awareness of such previously unseen events through video. Sam Gregory, program director at Witness said online distribution has made it easier to put videos in front of the right people such as decision makers and others with a personal connection to the cause. "It's not necessarily about the size of the audience it's about placing targeted video and turning 'watching' into action," said Gregory. Scott Schnaars, Holly's husband, said the eight-minute long video of his wife talking about her disease and then shaving her head to donate her hair to a charity that makes wigs has attracted more than 20,000 views on Metacafe and YouTube. But for the Schnaars the most important thing is that the video has helped educate people about the importance of recognizing any cancer symptoms as early as possible. "We've had amazing responses," they said. "The thing that's made us most happy is people sending us messages saying 'I've had these symptoms too, I am going to get checked out.'"

Your Pink Pictures - A Shameless Plug for a Good Cause

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I work for an awesome company. Yesterday, in honor of National Breast Cancer Awareness month, Yahoo! committed to donating $1 to the Susan G. Komen for the Cure foundation for every photo uploaded to the Passionately Pink Flickr group. Yahoo! is donating $50,000 for this. There are already about 40,000 photos uploaded. Be sure to stop by, join the group and upload your pink pictures.

It's Blog Day

Today is the 3rd annual BlogDay. It also marks (more or less) the 8th month anniversary of Holly's diagnosis of Stage 3 Colon Cancer. Not a great day in our lives, but we are well passed the half way point, which gives us some comfort. Throughout This Silliness, we have found amazing inspiration through a collection of bloggers who are documenting their bouts with cancer. The rules of BlogDay are fairly simple, identify 5 blogs that I find interesting, link to them and add a link to BlogDay somewhere in the post. Easy, peasy. I have about 20+ cancer related blogs that I subscribe to. In fact, this gives me motivation to do something with the side bar in terms of a feed. Let's see if I actually accomplish that. While all of the blogs that I read are exceptional in their own way, here are 5 that I come back to more than regularly. In no particular order. 1.) Derek K. Miller - Penmachine - Derek's photostream on Flickr was what originally inspired me to start this blog. He is a fantastic writer, focusing on his fight with colon cancer, technology and has awesome taste in music. I not only read his stuff to stay current on his struggle with cancer, but also to stay current on things that I deal with at work. 2.) Help Isabel - When a 5 year old has leukemia and her mother has the strength to write about it every single day, it is amazing stuff. Isabel is an inspiration to us all. 3.) Cancer is the Easy Part / Life With Heathens - Cancer is hard enough when you can pronounce what you have. Jo at CitEP / LWH blogs about her experience with Multiple Endocrine Neoplasia Type 2a, Medullary Thyroid Cancer and other little bits that life throws at her and continues to have an amazing attitude through it all. She has also been a wonderful part of the H4H community. 4.) My Cancer, Leroy Sievers - No list of cancer blogs would be complete without him. He is the writer I aspire to be. 5.) YouTumor - Shortly after Holly was diagnosed, I received an email that stated "We have some stuff in common. My name is Scott, I work in technology, and, unfortunately my wife also has cancer." From that day on, I was hooked. Scott also likes the Simpsons and making awesome pop culture references. Fortunately, his wife is doing well and they are moving to London. Scott and Beth both have infectious positive attitudes that make their posts really fun to read. I could go on all night. There are so many good blogs out there and it is great to see everyone being open about their experiences. Next year... Hopefully next year, all will be well and I can focus on other sites.

Don't Touch H4H, It's a Hot Member

Today, Hope For Holly was highlighted as a Hot Member within the MyBlogLog Community. It is a great honor to be added to the mix with past Hot Members including Andrew Wee, Tim Ferriss and Robert Kiyosaki amongst others. MyBlogLog has been so helpful for Holly and me in finding and reaching out to people who are going through similar ordeals. I've met amazing people and have really been touched by all who have joined and developed different cancer awareness communities in order to share their feelings, thoughts, ideas and positive thinking. It truly is the power of a flat world. I especially want to thank the illustrious Robyn Tippins for the exceptional write up on my sites.

Guess Who's Coming to Dinner?

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While we can't be 100% sure, we think that we've become the couple that people talk about before we show up at parties. You know the kind of conversations that I mean. "Hey everyone, gather round. Holly & Scott are coming over. Don't talk about cancer, don't review any movies, and if astrology comes up, you're a Libra." Then all night long, people kind of struggle to come up with conversations with us. "So, um, ah, what's new with you?" And I get it. Talking about cancer sucks. No one wants to be a killjoy at the soiree. But for anyone who reads this that has friends or relatives going through cancer, our feeling is that we'd rather get it off the table early on so that we can have a normal conversation versus getting 'the look' all night long. Having cancer sucks. Having a spouse with cancer sucks. But not talking about it, especially when it is on everyones mind, is no fun either. Most people are open about it. Most people want to educate others. It's okay. Bring it up.